NI: Court of Appeal: Department of Communities successfully appeals ‘terminally ill’ benefits case

NI: Court of Appeal: Department of Communities successfully appeals 'terminally ill' benefits case

The Court of Appeal has allowed an appeal by the Department for Communities (DfC) in a challenge against the legislation which provides that certain people with a terminal illness can receive welfare benefits without undergoing a full assessment.

Handing down the judgment yesterday on behalf of a three-judge panel, the Lord Chief Justice, Sir Declan Morgan, said the matter was “for the political process and not for the courts”.


Lorraine Cox was formally diagnosed with Motor Neurone Disease (MND) in 2018 and was given an estimated life expectancy of between two to five years. Having retired on medical grounds, she applied for Personal Independent Payments (PIP).

The Special Rules on Terminal Illness (SRTI) prescribe a mechanism for the payment of PIP and Universal Credit (UC) benefits without undergoing a full assessment to those who satisfy the definition of “terminally ill”.

The definition requires that a person is suffering from a progressive illness where death as a consequence of that disease can be reasonably expected within six months. It abolished the six-month qualifying period for benefits which existed prior to 1989 in order to facilitate the terminally ill.

The respondent brought proceedings against the Department for Communities and the Secretary of State for Work and Pensions, arguing that the rules breached her right to freedom from discrimination under Article 14 ECHR by treating her differently than others.

In October 2020, the High Court found the difference in treatment between the respondent and individuals who had a terminal diagnosis who were reasonably expected to die within six months but who survived beyond that point was not justified and constituted a breach of Article 14.

The DfC and DWP appealed that decision, contending that the trial judge erred in respect of his assessment that the respondent had status for the purpose of Article 14, that she was in an analogous group to others who have access to the SRTI mechanism and that the difference in her treatment was justified.

Policy and legislation

The court outlined the development of the policy and legislation which were the focus of the challenge in these proceedings. It said the effect of Article 87 of the Welfare Reform (NI) Order 2015 and regulation 2 and paragraph 1 of Schedule 9 to the Universal Credit Regulations (NI) 2016 is that a person applying for either UC or PIP on the ground of terminal illness must satisfy the criterion that death as a consequence of the illness can reasonably be expected within six months.

The 2015 Order was subject to independent reviews in 2018 and 2019. These recognised the concerns expressed regarding the SRTI and the “six-month rule”, finding that the modern reality of many terminal conditions is that people can live and need ongoing support for several years. It was recommended that the clinical judgment of a medical professional, indicating that the claimant has a terminal illness, should be sufficient to allow the SRTI to apply and that the six-month life expectancy criterion should be removed.

The clinical judgment approach was taken in Scotland where the Social Security (Scotland) Act 2018 provides for the Chief Medical Officer to develop guidance to medical practitioners when making determinations on terminal illness for the purpose of accessing benefits under SRTI. This guidance was published in July 2021.

In October 2020, the Northern Ireland Assembly adopted the recommendation that the six-month life expectancy criterion should be abolished and called on the Minister for Communities to “immediately” bring forward legislation abolishing the rule, providing guidance to health professionals and adopting a fairer definition of terminal illness. This was followed by a second independent review which again recommended the removal of the six-month criterion and its replacement with a system similar to that adopted in Scotland.

Subsequent to the hearing of this appeal, the DfC minister announced on 30 June 2021 an intention to replace the six-month timeframe with a period of 12 months within which death can reasonably be expected. The minister said it was her intention to implement this change before the expiry of the current mandate in May 2022. A similar announcement was made by the DWP minister on 8 July 2021.

Meaning of ‘terminal illness’

The issue in this case is what was meant by the phrase “death in consequence of the disease can reasonably be expected within six months”. The court made the following comments:

  • The use of the adverb “reasonably” introduces the concept of a range of values rather than a precise figure;
  • The phrase is governed by the need to identify a progressive illness; and
  • It is implicit in the provision that those facing the last six months of life with a progressive illness are highly likely to require the support which the benefits provide and that unless some fast-track to the benefits is provided they are likely to lose out on that support as a result of the bureaucratic process.

Turning to the practical application of the guides to interpretation, the court said it was clear that in any case where the prognosis can be fairly precisely determined as being expected within six months the legislative test would be met, whereas a timeframe of nine to 12 months lies outside the SRTI.

Where, however, the prognosis is more uncertain the conclusion may be that death may reasonably be expected over the next three to 12 months. The court said that applying a grammatical construction of the qualifying condition, it was clear that death can be reasonably expected within the statutory timeframe and while not probably within the six-month timeframe, entitlement to the benefit would be established.

The court accepted that in cases of MND and other progressive illnesses defining even a span of time within which death can reasonably be expected is likely to be difficult, but considered that the statutory test is appropriately satisfied by asking the question whether death as a consequence of the progressive illness within a six-month period would be a surprise (as recommended by the DfC).

Article 14 ECHR

The court cited R (on the application of SC, CB and 8 children) v Secretary of State for Work and Pensions and others [2021] UKSC 26 which gives guidance to the approach to Article 14 in the context of welfare benefits.

At first instance, the trial judge concluded that during the application process the respondent was a person suffering from a progressive illness as a consequence of which death was not unreasonably expected within a period of six months. The court said this was plainly an identifiable group and agreed that the requirement of status was satisfied.

The court further accepted that the evidence establishes that those suffering from MND have an unpredictable prognosis or trajectory about which it is impossible to be precise and that feeds into the outcome of the test for entitlement to benefit.

Analogous position and justification

The court then considered the issue of analogous position. It noted that 14 per cent of those who were awarded PIP and UC on the basis of the SRTI were still receiving those benefits three years later.

The court said this is sufficient to establish that the group of persons suffering from a progressive illness where there is a reasonable expectation of death as a result of the illness within a period of years is in an analogous position to the group who have a reasonable expectation of death as a result of the illness within six months. The real issue in this case was therefore one of justification for the difference in treatment between those groups.

Evidence from the DfC submitted that the SRTI rules provide a clear and specific definition of terminal illness which ensures that those closest to death are given immediate access to PIP and UC. It was also submitted that the definition safeguards public funds by avoiding an open-ended definition which would apply to more people than currently qualify whilst also providing a clear threshold against which the medical practitioners can assessment claimants.

It was contended that the rules have operated well in practice and have not, until recently, led to significant pressure for reform. The court accepted that there had been a measure of uncertainty about the definition of terminal illness but said that its grammatical construction of the qualifying condition could be said to be clear and specific. The court was also satisfied that the definition ensures that a group of people who are closest to death are given immediate access to benefits which is the legitimate aim and also safeguards public funds.

The next question for the court was justification. As this was a case involving welfare benefits the compatibility of the system overall has to be justified without giving undue weight to the circumstances of the individual – it is “a case about whether or where to draw the line within the welfare system”.

The court reflected that there had been parliamentary consideration of this matter in 1990 and 2010 and that the DfC minister has indicated an intention to extend the timeframe to 12 months, which is what the MND Association argued for.

It said there was no dispute about the fact that some special provision was necessary for those who might die as a result of a progressive illness in the course of going through the application process and that the line had been drawn at a point which seeks to identify the group of people where the need for benefits is highly likely to have arisen.

The court recognised that the determination of the prognosis by a medical professional is not hard-edged, and there may be some element of inconsistency. It accepted, however that clinical judgement is an adequate and acceptable tool in order to achieve the aims of ensuring the availability of a fast-track for those who need it and safeguarding public funds.

The court also accepted that one of the options available to policymakers is to provide that clinical judgement should make the determination of need in cases of progressive illness. That would involve consideration of the robustness of compliance with the needs based approach, the risk of diagnostic variability and any impact on budget.

The respondent had contended that she should have been treated differently from other applicants for the benefits who did not qualify under the fast-track approach as she has a diagnosis of a progressive illness.

The court, however, said: “A change in the access arrangements of the SRTI to facilitate particular medical conditions would represent a departure from the needs basis of the present provisions. That is plainly a controversial political matter which it is not for the courts to determine.”


The court accepted that a relatively strict approach had been taken in cases concerned with persons with disabilities in order to foster their full participation and integration in society. It said that objective was honoured in this case by the application process based on need and that this was not a case where the applicant has been excluded from the benefit.

The court noted that the DfC minister intends to submit a further proposed amendment to the benefits legislation to the Northern Ireland Assembly which will provide an opportunity for debate.

The Lord Chief Justice concluded: “This is an area where considerable weight should be given to the views of the primary decision maker. These choices are for the political process and not for the courts.”

The court allowed the appeal and dismissed the cross-appeal by the respondent.

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